Check Out My Ride!

Not my actual van, but basically the same thing.

RampGrandCaravan2

I never thought I would say this but I am loving having a mini-van. The Big Rigga Van arrived on Sunday evening last week (Big thanks to Mike Simmons for driving down to LA and turning around and driving back with it). So I have a 2013 Dodge Grand Caravan that is all white with a ramp that folds out of the passenger slider. It’s awesome! A big thank you to Josh for making the donation happen and a HUGE thank you to the Jewish Federation and the Berk Family for donating the vehicle. The van is allowing me to have the freedom and independence to come and go and not be dependent on para-transit. I can’t wait to put some beats in it!

I went to Ryan Perini’s wedding over the weekend and I must say I still look good in a suit. I had a fantastic time being amongst friends and supporters. A big benefit of being in a wheelchair on the dance floor is that everyone makes room for you and you can entertain people by doing donuts, plus I have a legitimate excuse as to why I can’t dance. That being said I wish the wheelchair was waterproof so I could have gone in the pond like my good friend Caleb for a late night swim. It was really unexpected and a little overwhelming to have so many people come up to me (a lot of people were friends of friends that I did not even know) and tell me how inspiring I am and how much my story has touched them.

I am continuing on with my acupuncture as well as the massage and am on a temporary lunch time break from PT while Aunt Sally is riding her bike across New York, so I am excited to go to SCI-Fit this week for the first time and do my assessment so I can get started. One of the trainers (Mike) has been working with me for the last month or so doing massage work and feels that I will gain a lot by being in their program. Their goal is to get me out of the chair and moving. You can learn more about them at http://www.sci-fit.org/

I visited a new GP (General Practioner) last week and he is light years beyond they last one I had. He is also my Grandmother’s GP so I hope he realizes that I am the one with SCI and not the one with Alzheimers.

Aside from that not much else to report. Thank you to everyone for their continued support and a big thank you to Lindsy and Josh!

Getting Settled In Sacramento

Welcome-to-East-Sacramento-2

It’s been another good week here in Sacramento. I went to the fund raising event at Vanguard in downtown Sacramento (thank you to Ryan P for organizing it). As much as I dislike being the center of attention it was great to be able to talk to everyone and be in that type of social setting. It was surprising to see so many people as there were a lot of people there that I did not expect to see and was very happy that they came.

I attended a wedding on the 4th of July which was my first social outing where I did not really know anyone. Thank you to Uncle Perry and Princess for getting me a trailer for my chair and thank you to Seth and April Astle for getting me and the chair to the wedding. I had a great time!

I am looking forward to Ryan P’s rehearsal dinner and wedding next weekend. I can’t wait to get out on the dance floor and do donuts in my chair. I will be offering free lap rides to any females under 50 years of age and 120 pounds. This will be a great experiment to see how my sexual functioning is progressing.

I have been utilizing para-transit to get to appointments and a few social activities. This service has worked out well. That being said I am extremely grateful to Josh, Irit, and the rest of the Jewish community for coming together and securing a mobility van donation for me. My awesome brother and Mike Simmons will be heading to Los Angeles tomorrow to pick up the van for me. I am so excited as this van will open up a number of doors for me with regards to independence and my ability to get to appointments and events in a safe and comfortable manner. Thank you, thank you, and thank you.

As I mentioned last week I went to see my spinal surgeon in San Francisco. He was very impressed with my progress and has given me the OK to start PT at SCI Fit and the neck collar will be coming off permanently on August 9th. I am bending the rule a little bit and when I am I make sure I am nowhere near a curb!

As far as my progress goes I have been doing OP PT with a new therapist which seems to be going great. She was surprised by my progress considering what had been written about me in my file. I also do almost daily PT with Aunt Sally and she is kicking my butt. It is neat to see the iPad display that shows my heart rate as it keeps me motivated. I am getting some workout mats donated and a number of people have asked what they can do to help when they visit. If/when you visit be prepared to get on the floor and help me with physical therapy and stretching.

I have not gained any new movement. Between massage therapy, acupuncture, and PT I am getting stronger and my flexibility is improving. The massage therapists and my caregivers have noticed a difference. I am also slowly weaning myself off of my compression socks and BP medications.

A big thanks to Adam Starr, I got rid of my hospital bed and am in a big boy’s bed so my living space feels homier rather than like a hospital. I get to see Trapper daily and am getting more into a routine which is very helpful.

As I mentioned work is being done on the new www.lovinglane.org website. I am looking for “appropriate” pictures of me with friends and family, so if you have any please email them to me for the site.

Josh and Irit continue to be very accommodating with visitors. Out of courtesy and respect to them and their family please coordinate all visits with myself and or Lindsy.

Thank you for everyone’s continued love and support.

Happy Hour With Loving Lane

Happy Hour WITH Loving Lane

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Friday, July 11th @ 5:00 PM – 9:00 PM
Event Creator: Ryan PieriniHosted By: Ryan Pierini

Vanguard 1415 1415 L St, Sacramento, CA

Come celebrate Lane’s arrival back to Sacramento with the one and only Lane “Loving Lane aka Big Rigga” Edwards. Yes, you heard right ladies and gentlemen. Lane will be at his first event and would like to see everybody there! So, please, arrive early, stay late, have a drink…or two, and celebrate with Lane, his family and his friends as we kick off the next chapter to his recovery!

Also, we want to give a BIG THANK YOU to the awesome owners at Vanguard for letting us use their beautiful venue for this event and donating 10% of the proceeds directly to Lane’s road to recovery. You guys are rock!

**Loving Lane shirts and bracelets available at the event**

http://www.hangtime.com/events/happy-hour-with-loving-lane/303138609856314


Lane Update 7/3/14

I am back in Sacramento!

So I have been home for a few weeks now and am adjusting to life out of the hospital and life as a person with quadriplegia. My good friend Josh and his wife Irit have welcomed me into their home with open arms and have been very accommodating. I have my own room with a hospital bed, wheel chairs, and Hoyer lift along with all my stuff including my flat screen TV for movies and Sports Center.

I am humbled by all of the support I have received from friends, loved ones, and complete strangers. To be honest it has been overwhelming but in a good way. Most people only get to experience this when they die, the silver lining in all of this is I get to experience it while I am still around. I am very grateful and appreciative to everyone who has contributed resources, research, donations, and most importantly time. It is a debt that I will never be able to repay. I am committed to myself and all of you to working on my recovery on a daily basis with 100% effort.

Since I no longer have 24 hour hospital care I have built a support/caregiver team which consists of Josh and Irit as well as Karen who is a certified caregiver that spends the first four hours of each day with me helping me with everything from getting out of bed, to showering, to eating, etc…. My days are spent with family and friends who come by and spend time with me and work with me on range of motion exercises and keep me company. Our neighbor and friend Lindsy has stepped into a personal assistant/caregiver roll and is with me in the evenings doing all the things I need to get to bed as well as helping me with scheduling, emails, etc… My mom has been great with driving down off the mountain to spend time with me, train the caregivers, and step in whenever needed.

It is “hot as balls” here in Sac but definitely not as humid as Thailand. I love that I am able to spend time with Trapper (my dog) every day and go on walks/rolls with him to the park across the street. Nothing like seeing an old dog with gray whiskers and a handsome young man in a power chair cruising the neighborhood and park.

I am working hard every day on my recovery and here is the latest. Aunt Sally and Princess come by almost daily and do physical therapy with me which is helping tremendously. I have gained extension in my left hand and am feeling sensation in my left leg. My grip is getting stronger in both hands and I am building overall body strength. I am doing outpatient physical therapy and occupational therapy at a clinic. In addition, I am have a massage therapist and acupuncturist that work with me.

I go to see my spinal surgeon in Sacramento next week who will update me on the functioning of my neck and will let me know when my collar comes off. Hopefully things are healing well so I can begin to participate at SCI-FIT which is a private gym in Sacramento for SCI patients.

The reality of being “disabled” or whatever the PC term is these days occurred earlier this week when my DMV placard came so that I can park in the blue spots. In addition I was approved for para-transit so I am more mobile. I have been doing car transfers in and out of my chair to my car but am looking forward to staying in my chair and utilizing the ride services. Josh has found a connection that we are working on to get a wheelchair van donated so hopefully that comes through in the near future as being able to get out of the house helps with my sense of independence and normalcy.

I am back with cell phone service and check my phone every few hours when someone is around. Josh and Irit have been very accommodating with visitors so if you would like to see me please contact me to coordinate. I am on a restricted diet so please do not bring food, however, there are a few dogs around here so feel free to bring treats.

I am excited to have my brother and his beautiful wife come visit next week. I am also looking forward to going to the fund raising event at Vanguard next Friday the 11th (Thanks to Ryan P for setting it up), ordering a Double Blue Dolphin on the rocks (aka: Water), and seeing everyone.

I am working closely with a web developer (Ben) so in the upcoming weeks there will be new revisions and updates to the www.lovinglane.org website. I am committing myself to doing a personal update at least once a week.

I hope everyone has a wonderful 4th of July weekend and please enjoy a beer or ten for me.

Thank you again for all your support,

Lane

p.s. The 4th is the 8 year anniversary of my father’s passing, he is with me daily.

Update June 15

He’s coming home!. After 6 months away from Sac, 2 of those in 3 different hospitals, Lane is returning to Sacramento tomorrow. Lane’s friend (Josh) since kindergarden has opened his home during this transition. Lane is excited and anxious about this next step as he has had some amazing support from hospital staff as well as friends and family. He says that he is ready to move on so here he goes. Lane will be spending the week acclimating to his new environment and meeting with his new recovery support network which consists of care givers, doctors, physical therapists, occupational therapists, and a few others. The support that has been shown to Lane through out this time has been absolutely amazing and he is very fortunate to have so many of you in his life. Thank you for all that you have done and will continue to do for Lane. Everything from phone calls & cards, visits & fundraisers, and thoughts and prayers have helped and will continue to help.

Update 6/9/14

T-Minus one week until Lane discharges from Valley Medical Center and returns to Sacramento. He is very excited to be coming "home". I spoke with him last night and he is in good spirits, excited, and ready. He has been working hard in PT both in the gym as well as the pool. He has been practicing transfers from his chair to the bed as well as chair to a vehicle in preparation for his discharge. Lane is making good strides with regards to muscle strength and continues to push his body to "wake-up". He was excited to hear about the comedy show last week and the great turn out and is very grateful for everyone’s’ continuing support. This week is another comedy show in San Francisco and there was a Motocross event yesterday which was a hit. Continue checking back to the site as the final discharge plan comes together we will be sharing more.

SF Comedy Show:

http://www.eventbrite.com/e/comedy-for-a-spinal-cause-presents-loving-lane-tickets-11656852961?aff=es2&rank=0

Lane Update 6/5/14

Lane continues to make progress. He is enjoying the pool and the freedom it brings to him. Mom has been looking at places in Sacramento for Lane’s discharge and he is excited about coming "Home", being around friends and family and moving on to the next steps in his recovery. His muscles continue to wake up and gain strength. He is becoming more proficient with his power chair and we are looking into a wheelchair accessible van. He heard about the Comedy Show turn out last night and is extremely grateful all of the support. He is looking forward to attending one when he can. Thank you to everyone for your ongoing support.

June 2, 2014 Lane Update

Had a good conversation with Lane tonight. Today was his first day without visitors as per his request. He is wanting to see what being by himself feels like which according to his doctors is a good step for him to be taking. He is finishing up his application to American River College so that he can have the opportunity to go back to school and finish his AA as well as take some adaptive PE classes. He is having us look into Sacramento opportunities for his next step and there seem to be more options. He is VERY excited as he is going in the pool tomorrow for the first time for PT and can’t wait to be weightless. He had a visitor over the weekend that went through Valley Med and had a similar injury so they were able to talk and he got some good "insider" info from her especially with regards to dating as well as the importance of a positive attitude and pushing himself in PT. It looks like he is tentatively set to discharge on the 16th of June. Trapper paid him a visit over the weekend which he enjoyed. He is excited about the turn outs for the upcoming comedy shows and can’t wait to go to one in the future. All things considered he seems to be in a good place and looking forward to getting out of the hospital and on with his life. Thank you to everyone for their continued support.

Lane’ Progress Update for 5-29-14

Spoke with Lane tonight and he is in really good spirits. Through much advocating by him and his family his discharge date has been extended to June 16th. The treatment team continues to be impressed by his improved functioning. He is practicing rolling himself in bed which would help to eliminate the need for 24 hour care. In addition he is able to move the fingers in both his left and right hands and now has gained functionality in his right foot as well. He tried the standing harness for the first time today and puked his guts out but is excited to try it again. He goes into the pool for the first time in the next day or so and can’t wait to be "weightless". He went on another outing to the movies and saw the new X-Men movie with his fellow SCI crew. His attitude is much more optimistic as is his desire to advocate and take control of his circumstances.